November 14, 1997
I hate going there I hate going there I hate going there.
I wake up and that thing, that feeling, that voice is there, talking to me: “You know you haven’t visited your Grandmother in a while. If she dies today you’ll have to kill yourself for not going.” I bargain with myself, try to put it off, create some rationalization that I can live with for not going today. What could that possibly be? It doesn’t work. I start bracing myself for the subway and bus ride in the cold, to what feels like the end of nowhere but is really Canarsie, Brooklyn, to fulfill my grandaughterly duties, to honor what my father taught me about taking care of your own. I wish I felt more humble and honorable about it, but most of the time, while I’m going, it’s like some heavy, onerous chore I just want to get over with.
I will never get used to that smell: pissy diapers, industrial cleaners, and stagnant people, washed in medicinal soap. I always have to brace myself on the elevator before I get to her floor. Then when the door opens the stank knocks me over. I always worry that it will be glommed on to me when I leave, my long wavy hair, my jeans. I hate it. I hate visiting her there. Day room is the worst. Slices of One Flew Over the Cuckoo’s Nest. A bright room with lots of big windows, mismatched chairs of naugahyde or metal and long folding tables with that fake wood grain. Humans in various states of dysfunction and hysteria and outrageousness and ossification, cursing streams or silent or almost normal. Tongues hanging like deli meat, limbs flailing at unseen demons or limp or petrified. Wearing Salvation Army throwaways crusted with today’s breakfast, yesterday’s lunch. No longer grasp that food is supposed to go in that hole between their chin and nose (What’s a chin? What’s a nose?). Or maybe they do but can’t seem to hit it. Constant cacophonous chatter making sense only to the chattering. A drooling, lumpy white man with skin hanging, somebody’s grandfather, sits with a cigarette and an inch of ash precariously hanging. The TV is always on. TV is always on. Blaring Xena or some infomercial or something. Sometimes that therapist with Jersey hair and cowboy boots tries to entice them to sing simple songs and remember what season it is.
“Toooo-Daaaaay iiiisss?………THuRRRZZDAY!!!!!!”
Upbeat but kind of desperate, she waits for responses but mostly gets grunts and slobber. Answers her own perky questions.
“The Sea-ZONNNN iiiiissss?……………FAAAAAALLL!!!!”
“THE NEXT HOL -I- DAY iiiisss???……….THANXS-GIIIIVVVIIING!!!!!
By the end she always looks pained and frustrated.
I love the nurses though! Caribbean nurses in fresh whites always saying to Grandma,
” How you doin’ Miss Wilson/Momma?!”
“All right, baby. This is my granddaughter!”
“She’s beautiful!” in tones one would use for a child, like I’m not there.
I know their accents are familiar to Grandma. Hope they’re a comfort. I know they are taking good care of her.
I usually bring her Jamaican beef patties and ginger beer, food from her life outside that she doesn’t even remember.
But this time there was that one nurse! Here I am slowly walking with Grandma who hasn’t been out of the home since Mom had her placed there last year Thanksgiving. I’m walking with her on my arm, back to her room, having this quiet visit. I’m only 5″6’ but she seems so small now. I’m thinking of the oddness of this moment; how odd it is that she feels shrunken next to me, this woman who was enormous in all the ways one can be enormous. She feels fragile. Fragile? My bigmouthed grandmother? I think about how my brother and I used to be embarrassed by her mass. Now she has the shape of a bottle of salad dressing, narrow on top with wide hips but her skin and the caftans she wears droop off of her. Odd. How odd it feels to be the one living on my own while she lives with babysitters. How odd it is to look at her and see part of myself and be uncertain of what or who she sees when she looks back at me. But we walk and I smile at the nurses sitting at their desk as we are passing. This knuckleheaded nurse, without compassionate eyes for the situation, shouts to me in my Grandmother’s presence,
“So has there been any talk in the family about taking her home for the holiday?”
I hold my breath. Just shake my head no, put my hand up to indicate to her to hold on. I’ll come back to talk to her in a minute. Please, not in front of Grandma. Walk. Lightly. Hope Grandma doesn’t catch on. Watch her carefully from the corner of my eye.
“Not even for a meal?!”
She’s hit me again. Lose a step from shock. I just wonder. I just wonder if she purchased this special brand of stupidity or was this a family trait. She just doesn’t know. She just doesn’t know.She doesn’t know what it was like before, the twisting we endured, especially Mom. She doesn’t know that Grandma, my sweet, fogged, unclear Grandmother, used to be violent when Mom took care of her. That’s why Grandma is in the home now and on medication.I remember when Mom was taking care of her at the house and she hired an aide for Grandma on the weekends. When Mom would take Grandma back to her apartment to give herself a break, Grandma would assault the aide. Whenever I called Mom she sounded weary and lost. Sometimes she could barely speak above a whisper. Always had some new war story about Grandma and these patient workers — “She did it again!” It seemed that practically every other month Mom would have to call the service to request a different person to look after Grandma. They just could not handle her, especially since Grandma was in her own house. Some strange woman gonna try to tell her what she couldn’t do in her own house?! Were they mad?! Swung that cane at the aide’s head and cursed her like a crazy person on the subway when the skinny woman wouldn’t let her eat what she wanted or did some slight thing to rile her in her domain. Started screaming and having tantrums. My parents would get phone calls from another fatigued, apologetic, suffering woman saying she had to call EMS to take Grandma to the hospital and sedate her. After a couple months, Mom couldn’t really find any more sacrificial saints willing to be thrown to Grandma. So she stayed at the house all the time. Then Grandma started swinging at Dad and Mom. That was it. Mom admitted defeat.So now
I’m stunned and stuck between impulses and questions:
Stabbing guilt.
Going Brooklyn on this nurse and cursing her out.
Did Grandma hear?
Will it set her off?
It did. THEN Grandma did the slow build, manic pacing thing, which I had never seen but only heard about from Dad. THEN, after the knuckleheaded nurse opened her reckless mouth, Grandma thinks I came to take her home with me. I get her to her room okay but she won’t sit but for a few seconds as I try to have this visit. She, of the legendary 16-IHOP-pancakes-upon-arrival-to-U.S.-soil only eats part of the beef patty I brought her. She’s got no teeth and either loses or won’t wear her dentures. Still she chews with her mouth open leaving masticated orange crust for the viewing, indifferently dropping flakes on her lap, which I clean up. I wipe her mouth and open the bottle for her. She only takes a few sips. Tells me,
“I’m ready to go.”
“Go where?”
“I’m ready to go.”
“You want to go back, back to the day room?”
“Yes.”
Heaves her bottom-heavy body up and I walk with her slowly, her arm in mine, guiding her to keep her hand on the wall railing, so she won’t fall like she’s done before. When she does, Mom and Dad get more phone calls. Ludicrous, early morning, sleep-ending phone calls from the nursing staff saying our 79-year-old muddled matriarch fell again but they “shouldn’t worry.”
I thought we were going to sit in the Cuckoo’s Nest for the visit. She sits for a moment, paces.
“Mommy coming?”
“My Mom’s at home, Grandma.”
“Unh.”
Goes back to her thoughts.
The vicious old lady with the pink floral K-Mart housecoat is sitting next to Grandma’s usual spot by the window. That window that looks out on to the homes for mentally disabled adults across the street and the crabgrass dumping lot. Vicious Old K-Mart Lady was cursing at me as usual,
“I’ll beat the shit out of you! I’ll beat the shit out of you! Fuck you! Get the fuck out of here!!!”
I know this woman is out of her head. Her medication is fading.
“Get the fuck out of here!!” Not bothering me, nope, not bothering “You stupid idiot!! Fuck” me. I know she’s not well. “you!!!! Dumb dick ” It’s sad, ” I’m gonna get somebody to kick your ass!!” really.
Grandma comes to my defense.
“You shut ya Dyamn mout’!!”
“It’s okay, Grandma, it’s okay.”
“Fuck you!!! I’m gonna beat yur ass!!!
“You shut ya Dyamn mout’ She’s just a young girl!!”
“I’ll kick yur ass, too!!”
“Come now!!! I’ll slap ya mout’!!! Ya too Dyamn fresh!!”
“It’s okay, Grandma, it’s okay.”
Sitting in the Cuckoo’s Nest between geriatric ids with not enough sense left to rise above. Besides, Grandma never could hold her tongue. Was always talking about how someone — family, friend, or foe was “vexing me and I gon’ to box her one if she don’ act right.”
Grandma, pissed at Vicious K-mart Lady, decides she wants to move again. We walk the obstacle course of smelly people in wheelchairs, past bedrooms with hospital beds holding her moaning and incontinent neighbors. She stands by her closet, stone still, not opening it, like she wants something, is waiting for it to pop out. Then when I gingerly ask her if she wants something, quickly turns, snapped from her trance, and walks back to the Nest. By this time, I’ve been here an hour. My good girl limit is up. Every time we move she gets a little more irritated. I get a little more nervous. I’m waiting for her to start swinging at me. Good luck, medication, and being a favorite grandchild can only last for so long.
We walk the course again, back to her room.
“You take me home now!”
“You are home!” Not true and you know it.
My brain is on fire with guilt.
Her home is a pleasant one-bedroom apartment 15 blocks from here that she was very proud of. It smells like curry, has a white crushed velvet couch and two red velvet armchairs covered in plastic slipcovers. It’s where she slept in that big, big bed she’s had as long as you’ve known her with the painting of a beatific white Jesus at her bedside. It’s where you spent a lot of Christmases eating good food, with your cousins and uncles and aunts and watching Uncle Papito get drunk and pee in the bathroom with the door open. Where Grandma used to go the Waldbaum’s in the shopping center across the street and sit in the courtyard with her friends afterwards on sunny days. Then she’d tell Mom about what was on sale when Mom called. Where you spent practically every Sunday of your childhood, visiting her after going to church with Mom, drinking sodas Mom wouldn’t let you have otherwise.
This is not her home.”Take me home wit’ you.”I know she means my parents’ house. The Alzheimer’s has taken her remembrance of the fact that I don’t live with them anymore. It’s one of those things that has slipped from her. Like the fact that I’m not in school anymore, graduated from college eight years ago. She was at my graduation, the only graduation she has ever been to. Still, every once in a while she’ll ask me how’s school like I’m still a freshman trying to get used to the dorms and life away from home.
I say nothing. I am dying.
As we walk out again, me too drained to guide her, she stops by the elevators at the top of the hall that leads to the Nest, like she’s the visitor waiting patiently to get on. Like she was just here to look in on a friend and bring her some stew. But she’s not even allowed to leave the floor like some residents. Might get lost and not know it. I remember in the Staten Island nursing home she was in briefly before she was placed here, she used to wander the building, causing the panic-stricken nurses to stop what they were doing to search for her.
“Mrs. Willllson!!! Mrs. Willlson!!!”
That happened the first time I went with Mom, Aunt Carmen, and Beverly to visit her there. The nurses found Grandma in the corner of somebody’s room sleeping, conked out from a night of fighting the nurse and refusing to go to bed. So now Mom got her a name registration bracelet from the Alzheimer’s Foundation, like those construction paper nametags I used to have to wear on kindergarten field trips.
I pull her away from the elevator and lead her down the hall. She questions me like an impatient child.
Back to the Nest.
Back down the hall.
“Where’s Mommy?”
Stop by the elevator.
“She gettin’ de car?”
Back to her room.
“We go home soon?”
Stop by the elevator.
“Where’s Mommy”
Back to the Nest.
“She gettin’ de car?”
Stop by the elevator.
“Where’s Mommy?”
Back to her room.
Keep walking past nurses, including the knucklehead who ignited the Great Panamanian Grandma Hallway Tour. She keeps looking at me like I am so very evil. The others must think I’m nuts or maybe they’re used to it working here. Anyway, they already think I’m weird because of my eyebrow ring.
Like I said, my good girl limit is up. There is no honor or comfort in this visit. I am fucking tired and depressed and I want to go home. On the edge of my own delirium, my defense field starts cracking and I can’t stop the toxin of affliction from seeping through again.
*****
“Your Grandmother was what they would call abusive in this country.”
“Grandma never said I love you, always found fault.”
“She hit me with a broom stick. Waited for me at the door.”
The voice of my Mother from a Sunday dinner a while ago, while Grandma was living with her and Dad. I hear it as I watch Grandma pacing, spinning, searching, waiting, wanting out. Wanting to go home, to my parents’ house to be cared for by the daughter who told me this. I try to wrap my brain around it: this fuzzy, bottom-heavy prune with loose skin and a grey buzz cut abused my mother. I’ve heard Mom’s voice a lot since that day, the purging. I hear it every time I wrestle with my conscience to get out of bed and come to this place to visit the woman who abused my mother and loves us both. I hear it all the time. See Mom’s face as we sat at the kitchen table that night after dinner. Feel the click that sank my chest and said we have crossed over. Don’t know where we are. Just know how I see Mom will never be the same. Feel achingly guilty all the time. All the time. Am I wrong for loving Grandma still?
*****
“I WANT TO GO HOME NOW!!!”
Her confusion has worn her patience.
Even with Alzheimer’s, even at half the heft she used to be, Grandma still scares me sometimes. So I’m a little shaken. In the midst of this moment of terror and the Grandma Tour, I am back in the body of the terrified little girl not understanding the strangeness of Grandma, afraid of her heavy hands. For a moment, not seeing another way free, I actually contemplate the impossible notion of taking her to my house in Park Slope, a house in which even I don’t want to live. I hate my three nosy housemates and there are way too many stairs for her.
Grandma and I are frustrated with each other.
Finally, with purpose and a plan, before I really do bawl on the floor in front of these nurses and my confused Grandmother, I grab my coat off her bed, walk her back down the hall — “Mommy comin’?” — through the course, past the bedridden moaners, past the nurses both sweet and knuckleheaded, to the Nest, holding a little tighter, tugging a little when we get to the elevator. Sit her firmly back in her chair in the amid the smell of vomit, by the window that looks out on the acre of chunky detritus of lives lived, next to Vicious Cursing K-Mart Lady. It ends like every visit does:
“I love you, Grandma.”
I kiss her very soft cheek.
“I love you, too, Baby.”
She smiles that smile that twists and warms my tired heart.
I run down the hallway looking over my shoulder. Feeling like a fugitive, I pace as I wait for the elevator. Get on before some bit of her former brash-mouthed self swipes away a chunk of her haze. Before she catches on that I’m not going to get Mom or the car. Walk quickly down the street talking to myself as always:
“I wish I could take her home I wish I could take her home I wish I could take her home!!! God, I wish I were rich.” And I understand why Mom brought her to our house to care for her.
It ‘s almost five. The sun is waning. I wait, near tears, in the cold for the bus that will take me to the train to the house in which I live without her. As I wait, the spasmodic soundtrack of voices and eight-millimeter memories of my tender childhood with Grandma converge again with Mom’s night of confession, cramming in my head for space and pieces of my allegiance.
“Mommy comin’?”
“Your Grandmother never wanted me to have any fun.”
“Good to see you!!! Good to see you God bless you”
“When I got my period she used to let your Uncle Papito watch me and her tear up strips of cloth for my underwear. We didn’t have sanitary napkins then in Panama.”
Grandma in her small, sunny kitchen cooking dinner
just for me when my mother was repulsed by me.
“She gettin’ de car?”
“I would be so embarrassed. Would wait till late at night,after everyone was asleep, to tear them. He’d wake up and watch me. Sittin’ there just grinnin’. When I begged her to make him go to bed she told me, ‘Just shut ya mout’ . He not botherin’ you!!’”
“This is my granddaughter!!!”
“She told me I was found in a trash can!! I believed her for a long, long time.”
“Gailie, what you want to eat? Take whatcha want.”
The two of us mischievously adding more 100 proof rum to the Christmas rum cake batter while Mom’s back was turned.
“I did everything for her. Washed clothes, cooked dinner. Papito and Mamita were always in trouble. Runnin’ the streets. She defended them. I could never do anything right. Never!!”
.
“You grow up so nice!!!” </font“
“Whatever self-esteem I have, I got from me!
I had to tell myself. ‘God don’t make no garbage!!”
7, 8, 9 year-old me on Grandma’s bed hypnotically combingher hair because she asked me to.
“She never said ‘I love you’.”
“I love you, too, baby.”
“She made me walk on my knees across upside-down bottle caps!!!!”
I don’t know what to do with the voices, whose side to champion. I love my mother. She has taught me to love Grandma. She is also the one who has always preached to me just let go of the past. Especially when I try to talk to her about how much her ostracizing hurt me after I came out. We don’t talk about it anymore. But she purged that night like she was at confession. I’d heard only pieces of the story before, written off as strict moms in the old days, a cautionary tale to remind me or my brother how good we had it. But that night was different. Some seal on a box buried long ago was broken. Her voice started to tighten and I saw in her eyes the rage encrusted behind her heart for so long. I saw that some things don’t ever heal, no matter how much you may cant a mantra to convince your spirit to let go, to bloodlet the soul of past pain. I saw the tortured little girl in Panama living with the strict mother with heavy hands. And I loved her small self.
And I look at Grandma, who has been part of my most special moments, who took care of me when her daughter was too embarrassed and betrayed by the honesty Mom assured me she and I would always have, when I told her I was gay. I look at Grandma’s shrinking heft, misshapen body, her hazy, erratic mind. I just want to take care of her. Any sliver of maternal instinct I have arises when I’m with her. I love her small self. Though, from the fear Grandma struck in me as a child, I know Mom is not exaggerating. That night sitting at the dinner table, I saw it. I saw what I had read in that book about caring for older parents happening: the pain and resentment from years ago arising in the midst of caring for this person. Resenting her more for needing you and having to be there when perhaps she wasn’t there when you needed her as a child. I was glad Mom was finally opening up to me. But I read the book so I knew: This, the letting go of past rage, is one of those things that has to happen to prepare for Grandma’s death. Knowing the why of a situation doesn’t make it any easier to take.
I’m gonna have a hard time sleeping tonight.
__________________________________________________________
November 15, 1997
I’ve been asking God what am I supposed to get out of this, watching Grandma exist like this. Don’t know yet. Some might say, some even in the family, she is receiving the boomerang of karma: she didn’t always treat people right when she could so now she’s getting hers. Now she has lost her mind and lives with people who vomit on themselves. The God I believe in is not a punishing God so I can’t go there. I always hear the clock ticking.
I got the message about living well and treating those around you well while you can. To the point of paranoia, I realize that a life can be over in some way without actually being dead. So I’m trying to pack all these important moments and conversations in, to really know the people who matter so that when they or I begin to disappear, the brain begins to melt like gel down a sink, there will be nothing left unsaid, no love or anger or concern kept within. You can take that with you.